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Re: Wait what did I come into this thread for again? Oh yeah, ADHD!

Hi all,

 

Welcome @ArraDreaming and @maddison , and cheers @TuxedoCat for giving me a heads up we have some new people in here. Life has been pretty hairy for me lately so it's taken a while to post, but I've had one eye on the thread.

 

@ArraDreaming, all I can say to you re meds is that no-one knows your mind and your body and your needs better than you do. If you feel your symptoms are unmanageable and you need help, meds are a reasonable thing to consider. If the side effects of the meds outweigh the benefits, you get to decide if you want to continue with them or not. Others can suggest things, but it's not their life or their decision.

 

For my part, I am not on meds. I have tried some, each one successively made life profoundly more difficult for me than it already was. I struggle hugely with working memory and focus, and my mind is never quiet. I've worked around that for most of my life and didn't even know I had ADHD until very recently - I'm in my 40s. The main reason I tried meds is that my husband is very ill and I am his carer. We also have birds to take care of. Fumbling along when looking after myself is one thing, keeping them safe and well is entirely another - they depend on me for so much, and my husband's care involves keeping track of a million little things my brain does not know what to do with. It was for the same reason that I stopped trying to take meds - I was alternately a barely awake zombie or going down the depression gurgler in response to various things I tried. That wild instability and even more profoundly decreased functionality in me was not only miserable for me but dangerous for my family. His health is way worse now than when I tried the meds last year - my executive dysfunction is a huge problem, but experimenting with meds would be worse. I'm choosing the lesser evil for my situation, as I guess we all must.

 

Dunno if that helps, but that's my story. Nice to meet you.

 

AFK.

Re: Wait what did I come into this thread for again? Oh yeah, ADHD!

Heya @AFK YAY! SO nice to see ya here. Sounds like you've got a massive load to carry at the moment ❤️ 

 

And yeah, I totally agree with what you said! We know our bodies best and weighing up the side-effects v the medication purpose such a balancing act and different for everyone. 

 

Do you have any tips for how to make that decision or how to advocate to Drs for what we want (whether that's meds or not!)? I feel like I'm still learning how to do that, and I know others would like to hear. No pressure if you don't feel up to it of course!

 

Re: Wait what did I come into this thread for again? Oh yeah, ADHD!

Hi @TuxedoCat , cheers for the friendly greeting - good to see you, too. Yeah, huge load to carry, and not the best qualified for carrying it! My little family is totally worth it, though.

 

Hm, tips on deciding to take meds or not... for something like ADHD, it's purely a quality of life thing. It ain't fatal if we don't take meds (unless we're on the reckless end of the spectrum, I guess). It can mess with things like work and relationships and managing a household, though, and all those things can feed into comorbidities like depression, anxiety and soforth. There are absolutely strategies for making those things easier without meds - they're not foolproof, but they help. There's good advice about that sort of thing in places like ADDitude Magazine, Totally ADD, or How to ADHD on YouTube, to name a few. A big thing to note about meds is that they aren't a magic fix-all, what they do is make it easier to use the strategies. If you're unsure about meds, research the heck out of strategies first and try them out. If they're not enough on their own to make life bearable, meds may be worth considering. I'll throw in a strategy of my own that I haven't seen on any of the websites about ADHD, but that has been huge for me - minimalism. The less unnecessary stuff you own, the less unimportant commitments you have, the less bad relationships you have, the better you can manage with executive dysfunction and emotional dysregulation. You'll probably spend less and need to work less, too. Win/win.

 

As for advocating for yourself with doctors, that's so important, and I do have a few thoughts. For one thing, they almost always come at you from a meds first approach. It's worth reading up about what meds there are and what to expect from them. Dr Google isn't exactly a definitive resource, but can give you an idea of what you want to ask. Also if you're having difficulties with a medication you're already on and want to stop it or try a different one, write down side-effects when you notice them (trust me, you'll forget if you don't write it down when you think of it) to paint a picture of why it's not the right option for you. By all means take the list to the doctor, I always end up walking in head-empty, being prepared is a must.

 

You're apt to have more trouble if you want help that isn't meds. Here you really want to do your research, because they don't love that route, there are limits to what they can offer, and in my experience if you don't already know what there is other than meds they probably won't tell you. The primary thing they can offer here is a Mental Health Care Plan so you can see a mental health specialist about either strategies for managing ADHD or to help you deal with comorbidities. Other options don't even involve a doctor, for instance hiring an ADHD coach to help with strategies (if you can afford it - I don't know of any way of getting a subsidy or anything for their services). I hear there are support groups through various organisations, haven't looked into them too closely. Then there's Googling the heck out of how to manage ADHD, and/or talking to people in social spaces like this with their own life experience to draw from.

 

Sorry, I know that's a lot of reading. It's a huge subject. Hope it helps.

 

AFK.

Re: Wait what did I come into this thread for again? Oh yeah, ADHD!

Hi, having been diagnosed four months ago, I'm still waiting for the psychiatric appointment so that I can trial medication. It's really frustrating.

 

 

*I'm actually really super peeved about this "only psychiatrists can prescribe" business. Imagine if type 1 diabetics could only get their first insulin prescription if they visited an endocrinologist and had to wait for months or years after their diagnosis. From all the resources I've been able to visit and to read, it's really clear that where there's a clinical need, stimulants are the most effective and safest medicines going in the psychiatric world. Grrrr. 

Re: Wait what did I come into this thread for again? Oh yeah, ADHD!

UGH guess who paid the ADHD tax today??

 

Despite post-it notes, I forgot about a doctors appointment this morning. I had to pay a $25 fee for not going. I forgot to set an alarm for the appointment and am so annoyed, but also having a laugh at myself. 

 

Just posting because even when we feel like we have our organisation tactics down-pat, sometimes they still fail us. 

 

Anyway, sending big hugs to anyone else who missed an appointment, forgot to call that friends back or anything else you get tripped up with ❤️ @AFK @R2RSD2 @maddison @Shaz51 @Jynx 

Re: Wait what did I come into this thread for again? Oh yeah, ADHD!

Thanks heaps for sharing & tagging me @TuxedoCat I know for me, that when I 'trip up' it can really add to bad self image. Especially if you spend your life being surrounded by ppl who are always 'on time.'

 

Gives me nice feeling to know it's ok & I'm not alone!

 

*Note to self - don't put so much pressure on yourself ♥️

Re: Wait what did I come into this thread for again? Oh yeah, ADHD!

thanks @maddison it's amazing how a "trip up" can make us feel so bad!! But yes, I agree with your note to self: less pressure for the both of us ❤️ 

Re: Wait what did I come into this thread for again? Oh yeah, ADHD!

Such a big MOOD @TuxedoCat . But I love your note to self too @maddison  that is so important. 

 

I love as well the flipside to being late or missing an appointment - and that is being perpetually early. I frequently over-compensate for those times I have been late and will sometimes show up to an appointment half an hour early - or more! Then comes the awkward milling about, trying to occupy my restless self so I don't have to sit awkwardly in a waiting room for (what feels like) an eon! 

 

Don't even get me started on how early I will arrive at the airport 😅 

Re: Wait what did I come into this thread for again? Oh yeah, ADHD!

Ohhh @Jynx , @TuxedoCat , @maddison 

And when you have to remember everyone else's appointments and scripts and medication,  wow 

🤣😂🤣😂 having notes everywhere 

@R2RSD2 , @AFK 

Re: Wait what did I come into this thread for again? Oh yeah, ADHD!

hahahahaha I can barely manage myself, let alone others! @Shaz51 

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